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The dietary issues can definitely CAUSE increased hormonal difficulties. Gluten intolerance and celiac actually can cause thyroid problems and adrenal issues- fixing these things can alleviate some of these problems without having to take the supplemental hormone. Dr Mariano talks about adequate iron to help the adrenals as well.
I was wondering about you consulting with Dr. Peatfield? He is in the UK and does email consultations. His email address is DrBarryPeatfield@AOL.com. He is very nice and knows a lot about thyroid and adrenals etc. Maybe you could see him as well.
Funny (not really) but my low cortisol issues have always been worse at night and I have to take isocort during the night to sleep well-
Good luck to you! I have been following your post on the Addison’s site.
Have you had vitamin D levels checked? Deficiency can cause depression. Also, sufficient levels help to control blood sugar I’m thinking with you being in GB and bedridden you have not gotten much in the way of sunshine? What about your ferritin levels? B12? magnesium? Definitely hormone deficiencies will contribute to your problems- but nutritional deficiencies also need to be addressed. Also, Crohns disease certainly makes it hard to absorb your nutrients and probably has a huge impact on your absorption of hc- you are probably only getting a fraction of what you are taking. Have you ever tried a gluten free diet? Just some thoughts…
Hey han, no my cholesterol is fairly high right now due to the hypothyroidism that can’t be corrected until I somehow get the adrenals balanced. Many years ago I had a total cholesterol of 88! It’s been up over 200 for years now. Yeah, the infection definitely takes it’s toll. I did just remember that I had some luck using lemon balm, I’ll have to go back to that and see how I do.
I, unfortunately, have the same problem. I, too have gone as high as 40mg of hc, have since weaned off to adrenal cortex extract and isocort as I had insomnia on hc. I have fixed ferritin, B12, D, and female hormones and STILL can’t tolerate more than 1/2 grain of thyroid med. I have Hashimoto’s and a high TSH (11) last time I checked. I just don’t get it- I’ve also tried other thyroid meds- T4, T3, old Armour, etc. I take Nutrimeds throid now as it’s a bit easier to tolerate. I, too have salt wasting so possibly florinef is the answer, I don’t know. I hate to try florinef and still not be able to tolerate thyroid meds. Also, for some reason, right now my usually low BP is a bit high so don’t really want to add florinef at this time. Grrrr!
Yes, B12 does contain cobalt. I did google cobalt dietary supplements and you can get them. If you are supplementing B12 and your labs result was 490, that is way too low. It should be up over 1000 if supplementing, if you are not supplementing you probably should. Methylcobalamin is a very bioavailable form.
When I was taking hc without much success, I spoke via email to Dr Peatfield in England. He has written books on thyroid/ adrenal issues. I was taking 35mg hc at the time and he said I could easily double it as absorption is a big problem for some hypothyroid patients and hc. I didn’t do that at the time as hc was causing low aldo (didn’t realize that was what was happening) and also stomach pain- probably stomach irritation from the hc was increasing poor absorption.
Anyway, those are just a few thoughts on your situation. I have found for myself that all hormones reacted weirdly in my body til I got optimized on nutrients, mainly, iron, B12, D, magnesium, etc. Also, I reacted adversely to some hormones when I was deficient in others- eg: could not tolerate progesterone til I got some estrogen into my system- so somewhere, with you there is a deficiency (or overabundance) in something that is causing everything else to go haywire. As Dr. M says, you have to keep searching.
Oh, I do remember also, that Dr Wright also states that the 24 hour urine will test high for these hormones as they are not being absorbed.
Don’t have the article in front of me right now, but Dr. Wright recommends cobalt to fix the problem. Will check out the article a bit more later and be back!
Figuring, interesting you should mention urinating your cortisol out and not using it. I just read- today- in the latest Townsend Letter- Examiner of Alternative Medicine- an article about steroid and other hormone hyperexcretion. The article is by Dr. Jonathan Wright MD and is originally referring to estrogen hyperexcretion, but also states that he occasionally sees this same problem with testosterone and cortisol. I know you can read the articles online if you can’t find the magazine- January 2010 issue. The article is titled: Bioidentical Hormone Replacement Therapy (BHRT) Common Issues and Solutions, starting on page 56.
-Chris
Due to digestive issues, people with hypothyroid generally do not do well on slow release anything. Taking hc in 4 divided doses works better for most.
Your ‘hyper’ symptoms from thyroid meds could have been, in actuality, low cortisol from adrenal stress from the thyroid meds. If so, it would make sense that you would react the way you are to Metformin. If you read the insert, it say not to use with adrenal problems. I had the same reaction, than read the insert, and wondered why in hell my doctor prescribed a med for me that would worsen my low cortisol symptoms???
Yes, this I understand- although my original questions were regarding thyroid inflammation.
Anyone?
Over time, as my thyroid becomes more ‘destroyed’, will the inflammation and accompanying symptoms decline?
Also, due to the severity of my thyroid inflammation, could Grave’s antibodies play a part in this?
I am post menopausal so I take biest, progesterone, pregnenolone and DHEA. Estrogen is a MUST for me- I can’t think without it!
I know about the Hashimoto roller coaster!
I have taken 200mg of selenium for a few years- it does help.
There have been times, due to my extreme thyroid sensitivities to have my thyroid removed- but would be very fearful of surgery due to low cortisol and inability to tolerate thyroid meds- but it has been a tempting thought, at times!
I really do feel quite well, and am able to get along with work, etc, now, but there is always room for improvement- and the nagging issue of thyroid inflammation. I have used quercetin with some success in reducing inflammation but have heard some negatives about it regarding thyroid function and interfering with estrogen therapy, so I use it sparingly.I had a bit of bloodwork done in July- I’m not big on it because it really hasn’t helped much- but I did have a TSH done which was 11, and ferritin was 96 after supplementing according to Dr Mariano’s general recommendations regarding importance of raising low ferritin.
Issues I deal with:
Hashimoto’s
Celiac
MVP
Adrenal Insufficiency
ManopauseThanks for the reply.
Sorry I wasn’t more specific- the feeling is a buzzing feeling in my chest and neck- there is no buzziness in my arms or legs. The feeling goes away with anti inflammatories as it is a heightened inflammation of my thyroid gland from iodine ingestion. I just pop a couple white willow capsules and it is over in 20-30 minutes. Eating out is a problem because if I ingest too much iodized salt that has been used in the preparation of the food, I will get this- iodized salt seems to be the worst offender. I can now eat fish- which I didn’t do for 4 years due to this- with minimal reaction to the iodine. Seems the ‘natural’ iodine in the fish is less of a problem than the iodine in salt.I’m really curious to know if this will eventually disappear as my thyroid burns itself out. I, too, have very high autoantibodies (1500) at last count. I also have weak adrenals, and always have had. In addition to raising my ferritin, Vit D and B12, all of which have helped my adrenals as well as balancing sex hormones, I take adrenal cortex extract and isocort, but STILL cannot raise thyroid meds- I have tried every conceivable type of thyroid med- now I just take NutriMeds as it is pretty gentle. I have, in the past take hc, but it aggravated my stomach, gave me insomnia, and brought out pretty harsh low aldosterone symptoms- and my doctor was clueless so I weaned off. Perhaps what I am doing for my adrenals is not enough but I am kind of stuck btw a rock and a hard place. I also must have low ACTH because any ‘cortisone’ besides adrenal cortex drops in the morning cause a rapid down regulation of my adrenals and I need quite a bit of outside cortisone to function- then I end up with insomnia. So I take my first dose of isocort at 4pm, then again at bedtime and then when I wake about 1:30am- I know this seems like a crazy pattern but it works the best of anything I have tried so far. My natural cortisol production plummets at night to nothing.
