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I am interested to know who on this forum is doing well on a T4 only treatment with Levothyroxine?
How long has this worked for you?
Also what dosage are you on?
And if you are doing well i believe you are converting T4 to T3 adequately and don’t need the T3 component.
bump, interested in this question as well. I know Dr. M likes T4 only, but havent heard too much personal experience from it, especially long term t4 only.
I have been on T4 exclusively for almost 3 years. I can’t recall my exact numbers without digging for labs…but free T3 has always tested at the top of the range, around 4. And free T4 has been slightly above midpoint on the range. TSH very low, under 1. My dose started at 88mcg, down to 75mcg a day and 150mcg on sunday, then currently at 100mcg day.
However, my hypothyroidism is largely due to the lithium i take for bipolar. I suspect i was probably hypo or borderline hypothyroid before i started lithium, just never had extensive lab work done. A month into lithium treatment my TSH doubled from 4.xx to 8.xx. That was when i started T4.
My wife takes T4 and T3. 125mcg and 5mcg, respectively. Her numbers aren’t as optimal as mine. Don’t remember exactly what they are though.
Because many of the medical boards throughout the world refuse to take account of the available scientific evidence to show that not everybody gets well on T4-only, they will now have to take into consideration the existence of counterexamples to T4-only therapy. Thyroid Patient Advocacy (TPA) intend to support our view through the development of a worldwide register of patients who are unable to benefit from T4-only **http://www.tpa-uk.org.uk/register_of_counterexamples.php** and to this end, we have created a very short questionnaire for those who still had symptoms of hypothyroidism when treated with T4-only, and tried a T3 thyroid hormone product. The results of this questionnaire will enable us to create the first world0wide ‘REGISTER OF COUNTEREXAMPLES TO LEVOTHYROXINE (T4) ONLY THERAPY’ for those still suffering the symptoms of hypothyroidism. The objective is to draw to the attention of those responsible authorities throughout the world, the dire need for an urgent re-examination of the existing protocol for the diagnosis and management of the symptoms of hypothyroidism.
Our Register of Counterexamples will run alongside Dr Gordon Skinner’s ‘WORLD THYROID REGISTER. Please take a minute to add your name to this VERY IMPORTANT Register and ask family and friends to do so too ‘www.worldthyroidregister.com’ .
Many thanks
Sheila
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