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@wondering 2345 wrote:
Screw the tests your symptoms indicate Adrenal issues – both pre-treatment, treatment and post-treatment. What other evidence do you need?
But if cortisol is high normal then wouldn’t adding extra cortisol make issues worse? Yes they all indicate adrenal issues but its not their on the bloods which is frustrating. Even the chinese herbal medicine Doc i see says i have weak kidney energy lol main issue. Before he said it was thyroid.
What i’m wondering about HC or isocort isn’t it known to cause weight gain since cortisol use can cause rapid weight gain if you are showing relatively normal cortisol levels on a blood test?
@MetalMX 2348 wrote:
And look at that SHBG level. Christ that is a big clue to something wrong inside the body.
I haven’t had resolving of hypo symptoms with thyroid meds alone. And temps just drop with more meds.
On bloodwork:
Low Free T with a Normal Total T.
Really high SHBG 2x over range.
Low IGF-1Im doing another Saliva Cortisol see what happens.
Have people had normal cortisol with adrenal symptoms and tried HC/isocort and resolved their symptoms?
If you talking about low Testosterone your free T with high levels of SHBG this can be due to High levels of Estradiol with high levels you end up with high levels of SHBG and this binds up your Testosterone levels so test this if its high get it down.
As for how you felt after your game this sure sounds to me like your Cortisol levels fell to low. I ended up in the ER 2xs 2 yrs ago and I was on Cortef 20 mgs a day at the time I over did it working out side in the heat. They gave me a big shot of HC when I told them I have Adrenal Insufficiency and my Dr. after this happened upped my dose of Cortef to 25mgs when it happened again he upped it to 30 mgs now I do fine.
http://www.cushings-help.com/911.htmYou can’t tell if you are AI unless you do a 4x’s in a day Saliva test for Cortio. Read this link in this are labs and a FAQ’s I helped with about Adreanls.
http://livingnetwork.co.za/hormones/adrenal-fatigue/T4 only meds don’t work for most people with Thyroid problems read my link on how I got started treating my Adrenals and Thyroid.
http://forums.realthyroidhelp.com/Also get some good pink sea salt take a 1/2 tsp full in a glass of water first thing in the morning see if this helps you feel better.
@MetalMX 2350 wrote:I haven’t had resolving of hypo symptoms with thyroid meds alone. And temps just drop with more meds.
On bloodwork:
Low Free T with a Normal Total T.
Really high SHBG 2x over range.
Low IGF-1Im doing another Saliva Cortisol see what happens.
Have people had normal cortisol with adrenal symptoms and tried HC/isocort and resolved their symptoms?
@pmgamer18 2352 wrote:
If you talking about low Testosterone your free T with high levels of SHBG this can be due to High levels of Estradiol with high levels you end up with high levels of SHBG and this binds up your Testosterone levels so test this if its high get it down.
As for how you felt after your game this sure sounds to me like your Cortisol levels fell to low. I ended up in the ER 2xs 2 yrs ago and I was on Cortef 20 mgs a day at the time I over did it working out side in the heat. They gave me a big shot of HC when I told them I have Adrenal Insufficiency and my Dr. after this happened upped my dose of Cortef to 25mgs when it happened again he upped it to 30 mgs now I do fine.
http://www.cushings-help.com/911.htmYou can’t tell if you are AI unless you do a 4x’s in a day Saliva test for Cortio. Read this link in this are labs and a FAQ’s I helped with about Adreanls.
http://livingnetwork.co.za/hormones/adrenal-fatigue/T4 only meds don’t work for most people with Thyroid problems read my link on how I got started treating my Adrenals and Thyroid.
http://forums.realthyroidhelp.com/Also get some good pink sea salt take a 1/2 tsp full in a glass of water first thing in the morning see if this helps you feel better.
Yep thats pretty much what happened. My cortisol tanked during the tennis game after i had nausea, low blood sugar and vomited. And didn’t recover till morning with a BP of 90/70.
Tomorrow morning i am doing a cortisol saliva on a good dose of thyroid hormone to see whats happening this should confirm low cortisol. I don’t know if i have AI or just underfunctioning adrenals so we will see.
When trying isocort felt awesome. Energy, sex drive, interest in life and activities simply return so yea just want to confirm it on the saliva.
With Isocort did notice hot flashes and nipple issues so maybe my low cortisol is hiding the high estrogen when i am not feeling when i have low cortisol. But will take it one at a time, first adrenals then estrogen and go from their.
Thanks for the post man.
😉
Your Cortisol can be HIGH or LOW wheny ou have Adrenal isseus. it isn’t about the levels, it is about produci g what you need, WHEN you need it.
Your Adrenals are not doing this. Adrenal issues are best diagnosed by symptoms as your Cortisol levels can spike at any moment.
Seems obvious that you have Adrenal issues.
@MetalMX 2347 wrote:
But if cortisol is high normal then wouldn’t adding extra cortisol make issues worse? Yes they all indicate adrenal issues but its not their on the bloods which is frustrating. Even the chinese herbal medicine Doc i see says i have weak kidney energy lol main issue. Before he said it was thyroid.
What i’m wondering about HC or isocort isn’t it known to cause weight gain since cortisol use can cause rapid weight gain if you are showing relatively normal cortisol levels on a blood test?
@wondering 2361 wrote:
Your Cortisol can be HIGH or LOW wheny ou have Adrenal isseus. it isn’t about the levels, it is about produci g what you need, WHEN you need it.
Your Adrenals are not doing this. Adrenal issues are best diagnosed by symptoms as your Cortisol levels can spike at any moment.
Seems obvious that you have Adrenal issues.
One thing i frequently experience above anything else is difficulty breathing/air hunger and tingling in my throat like something is crawling in their. This is the worst symptom ever, along with all this other crap. Oh and the waking up 3 times a night right after falling asleep for the past 4 years.
Has anyone had this symptom on this forum as well who had adrenal problems?
It would be good if someone could post about their symptoms/life issues due to adrenals and how symptoms resolved after HC treatment or getting their adrenals in good shape.
@MetalMX 2381 wrote:
One thing i frequently experience above anything else is difficulty breathing/air hunger and tingling in my throat like something is crawling in their. This is the worst symptom ever, along with all this other crap. Oh and the waking up 3 times a night right after falling asleep for the past 4 years.
Has anyone had this symptom on this forum as well who had adrenal problems?
It would be good if someone could post about their symptoms/life issues due to adrenals and how symptoms resolved after HC treatment or getting their adrenals in good shape.
I have both adrenal and thyroid issues and have the same symptoms as you do. I would wake up 3-4 times per night every damn night when my thyroid was off. As soon as I got my thyroid in check I slept like a baby after years of not know what was causing it. I was hypothyroid and this can cause it for sure. I recently went hyper and these symptoms came back then I lowered my thyroid dose and went hypo again and guess what symptoms came right back…..many nights waking up all night again!! I’ve increased my t-3 a bit and kept my armour the same and now starting to sleep ok. I’m not completely there yet, but gotten better sleep. If your adrenals are out of whack this could be an issue too.
I had high level of cortisol at night during sleep and low during the day. I started with phosphatidylserine and it worked good enough until I treated adrenals with cortef. Fixing thyroid and adrenals help me a lot. Just keep in mind that you may experience this for sometime until you’ve reached the correct doses for thyroid and adrenals if thats your issues according to your labs. It does take time to figure the correct dose and taking many labs, but try to hang in there.
@loopy107 2383 wrote:
I have both adrenal and thyroid issues and have the same symptoms as you do. I would wake up 3-4 times per night every damn night when my thyroid was off. As soon as I got my thyroid in check I slept like a baby after years of not know what was causing it. I was hypothyroid and this can cause it for sure. I recently went hyper and these symptoms came back then I lowered my thyroid dose and went hypo again and guess what symptoms came right back…..many nights waking up all night again!! I’ve increased my t-3 a bit and kept my armour the same and now starting to sleep ok. I’m not completely there yet, but gotten better sleep. If your adrenals are out of whack this could be an issue too.
I had high level of cortisol at night during sleep and low during the day. I started with phosphatidylserine and it worked good enough until I treated adrenals with cortef. Fixing thyroid and adrenals help me a lot. Just keep in mind that you may experience this for sometime until you’ve reached the correct doses for thyroid and adrenals if thats your issues according to your labs. It does take time to figure the correct dose and taking many labs, but try to hang in there.
Yeah i know you just have to find your individualised dosages to feel good. God its tough hanging in their… has been like this for 3 years, last year was most severe. But since i feel much improved then before then it has been much easier to cope. Just want to get back to working and more normal routine since i have been unemployed and unable to study for a year straight due to issues.
So you are on armour and T3? What dosages? and what dosage of HC are you on?
@MetalMX 2384 wrote:
Yeah i know you just have to find your individualised dosages to feel good. God its tough hanging in their… has been like this for 3 years, last year was most severe. But since i feel much improved then before then it has been much easier to cope. Just want to get back to working and more normal routine since i have been unemployed and unable to study for a year straight due to issues.
So you are on armour and T3? What dosages? and what dosage of HC are you on?
Loopy has been working with me for over 2 years almost and it has been a slow and gradual process, but there has been improvements. Getting the thyroid and adrenals in check are the biggest thing because this imbalance can cause symptoms to over lap. Right now we are getting to take a huge step which is probably going to be on the most crucial steps to his recovery. Even though his levels have been some what healthy in the past with TRT it is not untill he gets his adrenals/thyroid in check before he will feel better. Having a low SHBg is going to work in his favor because his bio T is going to be sky high which requires lower T levels like 400-500 to function properly. Now that he has adrenal and thyroid in check we move on to the next phase and which i think is the icing on the cake for him.
Thats good HAN. I guess it takes time for some people to get well since a lot of people need individualised treatment plans.
What i don’t understand is why doctors are so blind sometimes. They just look at the bloodwork and forget about the person. Wasn’t their ever a time doctors did diagnosis based on symptoms alone? I think their was.
I mean i have done bloodwork for adrenals etc… saying it was normal but my god my symptoms aren’t normal whatsoever they are obviously indicative of something wrong. And i would have been thinking to this day that i had some incurable disease or CFS if it we’re not for the medical research i have done day in and day out and the knowledge i have gathered.
I try to go out today, to the shopping centre. I can barely get to the bus stop because i can’t drive their i don’t feel well enough today to drive i feel i might crash lol. I get their catch the bus and get to the shops, during the bus ride i am nauseaous. Once Inside the shopping centre i’m already fatigued, short of breath and feeling unsteady. My legs feel heavy and my whole body feels like a ton of bricks. I walk around a bit then decide i have to go home i cant function. I keep seeing floaters and im getting tingling in my back, arms, legs and different places, I Have so many things i want to do but i don’t have the energy to do anything.
I have to sit down a few times as well. I go home put some salt in water and drink it and get some minor relief, i then sit down at the computer and start typing this up. I grab some broth soup as well and feel a bit better afterwards. Maybe i should explain this to the doctor, aren’t these obvious symptoms of adrenal insufficiency/low cortisol that just slap you in the f**kin face?
When i go to bed at night i wake up several times. A few of which i notice my heart skipping a beat i then grab salt and water and this arrithmiya goes away.
And why did almost all my symptoms resolve with Isocort… You guessed it.
Now i have to wait for these saliva results to come in. And maybe do a ACTH Stim test while on thyroid since the one i did last year was when i wasn’t on thyroid for my hashimoto’s. So this would give a false reading wouldn’t it?
Regardless of all this i have ordered HC online and am definitely going to be on this. I have already spent my whole teen years and young adulthood not living my life, now at 20 i will finally start living it to the max!
@MetalMX 2384 wrote:
Yeah i know you just have to find your individualised dosages to feel good. God its tough hanging in their… has been like this for 3 years, last year was most severe. But since i feel much improved then before then it has been much easier to cope. Just want to get back to working and more normal routine since i have been unemployed and unable to study for a year straight due to issues.
So you are on armour and T3? What dosages? and what dosage of HC are you on?
I’m on 1 grain of armour and 10mcgs of T-3 along with 20mg of cortef. This does work well for me, but it does take time to get the dosing correct. What may work for me may not for you. Keep track of your symptoms as your doctor changes your dosing around based on your lab results and the symptoms that you have until you feel better. For me cortef didn’t really start working well until I got to 20mg dose. Now I don’t wake up as fatigued as I used to. I never wanted to get out of bed in the morning because my cortisol levels sucked in the morning, but now it’s not that bad anymore. I did have a few really tough months until I got my adrenals in check. Definitely feeling better with cortef at 20mg.
My thyroid is doing much better now, but still tweaking the T-3 dosing very slowly and noticing improvements. Ears still ringing and motivation and energy is still down, but I’m not fatigued or sluggish anymore which I’m happy about. You don’t want to over do it so you don’t go hyper.
@loopy107 2405 wrote:
I’m on 1 grain of armour and 10mcgs of T-3 along with 20mg of cortef. This does work well for me, but it does take time to get the dosing correct. What may work for me may not for you. Keep track of your symptoms as your doctor changes your dosing around based on your lab results and the symptoms that you have until you feel better. For me cortef didn’t really start working well until I got to 20mg dose. Now I don’t wake up as fatigued as I used to. I never wanted to get out of bed in the morning because my cortisol levels sucked in the morning, but now it’s not that bad anymore. I did have a few really tough months until I got my adrenals in check. Definitely feeling better with cortef at 20mg.
My thyroid is doing much better now, but still tweaking the T-3 dosing very slowly and noticing improvements. Ears still ringing and motivation and energy is still down, but I’m not fatigued or sluggish anymore which I’m happy about. You don’t want to over do it so you don’t go hyper.
Thanks for letting me know your experience. It just takes time i guess to get well just like it did to get unwell i suppose. This is what i will be doing as well tweaking the doses.
I tried compounded which is similar to armour but it didn’t work well for me. I had a normal FreeT3 with a low FreeT4. Now i switched to Levothyroxine and Cytomel and these work much better for me. I will also try the new ERFA thyroid in the near future and try it sublingually to see how that works. I am just starting a small amount of slow-release HC and will see how this improves things.
One thing i have found which is good to do it to make an excel file and track your temperatures 3x per day as well as how you feel and also your medications which you we’re on that day. Based on this you can then figure out what is and what isn’t appropriate for your body and how its reacting and how you feel so you know what worked best for you.
I have also found i needed to seriously change my lifestyle as i was constantly in a ball of tension regarding health and this just made me more fatigued constantly and weak because i am dwelling on my health isues 24/7. Right now i woke up and just took it as a normal day which i am perfectly healthy and have set out a few things i wanted to do today. Such as maybe look to buy some things at a shopping centre, fix a few things around the house, read a book, talk to some friends maybe play tennis a little. Stuff like that.
I am working through getting well too.
I am taking 20mg HC and 2 grains thyroid-s.
i increased the thyroid last week and had a great week, but now feeling a bit low /hypo again. It is really weird when i make a change in medication as i always feel great for a week. Placebo for sure, but temps did increase, so maybe i just need more thyroid hormone.
i may increase again today as it has been 7 days since my last increase.
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