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Thanks – firstly for reaffiriming my “impossible” revelation to the endo i was with that i might need more cortisol at night.
I had read a lot about Dr Peatfield and trie to get in touch but he seemed to be moving or not fixed to a location at the time and i never got a reply. From his blogs etc i could see he was proactive and open mined and definitely someone i wanted to bounce ideas with and have some advice. I will try again to contact him as soon as these bloods are back an idea have an idea where im at. Also was lucky enough to find a private GP who kind of gets it – he has a sport background and can relate to an elite athlete suddenly being bedridden, jobless and worse (for me) unable to train and do the sport they dedicated their life to. He is referring me to a speicialist he can ork with and im happy to do that if it yields results. He was pretty off the radar i think for the same reason Peatfield and Dr Carhill are/were – they get ostracised for actually doing their jobs and being proactive!
Il keep posting here in the hope more people can offer their experience and advice as it really does help and hopefully i can add to the “good news” stories on this board in the future 🙂
Alas despite several messages and hasing no contat from Dr Peatfield (he is hard to track down!)
Fortunately though i HAVE found a good endo it seems who i met on Friday, he seemed to be able to comprehend things and said first of all we need to do a day curve on meds to see what my cortisol is doing and how im absorbing meds. Then we can start ruling things off from there- some words of sanity! (albeit it will cost me a fortune as its all privately funded – insurance wotn cover it and i will have to book a funeral before i get any NHS appointments)
My MLM preg arrived today and il try that and see if it helps anything, i know first we have to get the cortisol and thryoid meds balanced and then we will have to look into tuning the other bits (im sure there is a lot to do there). I will do anything, go annywhere, try or take anything to get myself back. Cant stand being this fat bloated wreck who cant get out of bed half the days of the week to even work, the mental anguish of seeing this all slip away despite fighting tooth and nail and wondering what happened to the athlete who could push himself through anything reach any goal and was in really great shape physically.
For anyone in england there was a real eye opener in the daily mail health section where a junior doctor spoke out about what really happens in nhs hospitals now and why the system is such a pile of ****.
The bloods that took forever…..Here they are:
Free T4: 16.9 (10.5-25)
Free T3: 3.4 (2.3-6.5)
TSH: <0.01 (ive been on levothyroxine for a few years so no big suprise – but a highish t4 intake is not making a difference or pushing t3 up…)Testosterone: 10.5 nmol/l (8-30)
Oestradiol: 83 pmol/l (0-150)
Progesterone: 0.8 nmol/l (0.7-4.3)DHEA: 1.5 umol/l (0.45-13.4)
Seems to me some pretty obviousl things to address and the way to fix them but wanted to get your opinions without pushing for answers i think i want to hear first.
As mentioned earlier, meds are:
HC – 30/40 mg daily
Synthroid – 200mcg daily (time to change?)
Azathioprine: 100mg daily (also humira 40mg every 2 weeks subQ)5htp: 200mg daily, L-dopa: 100mg daily, Melatonin some nights. Vit D – 5000iu, Multivit with zinc.
Came off venlefaxine 2/3 weeks ago hence the 5htp and ldopa to help as i withdrew.
Current issues: Fatigue, imsomnia (broken sleep no more than an hour at a time and 4 hours a night) severe brain fog, joint pain, slow healing, NO libido, low temp, depression/apathy, hypoglycemia and intense hunger at night only.
Hope someone can offer some ideas 🙂
Cheers
Hey man,
I`m glad to hear you found a good endocrinologist. Hopefully, he will be able to provide you with the help you obviously need.
Let us know what happen with you 🙂
Good luck!
John
I have done a lot of research into this and I can think of a few things. First the Effexor probably perpetuated your fatigue big time because of its norepinephrine reuptake properties. A pure ssri like lexapro would be highly beneficial in my opinion, for you. Secondly are you still exercising? I would cut the exercise down to nothing but walking for a few months at least until symptoms resolve. Thirdly I would focus on diet and cut out a lot of carbohydrates. I would go for a ratio of 35% fat 35% protein and 30% carbs. Also, get to sleep by 10pm and then sleep in until your body wakes you up.
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